The first year with our new family member. Miss Rubenstein-Taybi, otherwise known as Layla Belle McKay. My daughter.
After 8 months I still - very rarely, but does happen - reflect. For anyone who has a baby who is outside of the "normal" spectrum, reflection of your newborn is kind of different. Is that fair to say? The first three months of her life, for instance, I think back and feel confused. What on earth was happenning?? What happenned to my baby's first forey into this world? Why is she so different from her two big sisters? Nothing about this process was any different?? What what what what what!!! That's the drama side of me.
I also reflect and remember sitting on my cot in the NICU with my babe and swimming in her baby smell. That beautiful squishy smell that all babies come into the world with. Yes she is different but like all bubs, she is a ball of love and exquisitness.
That is the kind of stuff that I take with me and go to bed with in my mind. That is what this journey is going to be. Cherishing this life and all that it is going to be. I don't know what Rubenstein Taybi diagnosis is, but I will and it is all ahead of me to live through and get to know very well. With all the appointments, investigations, research, surgeries, side effects, etc.
What I also look forward to is getting to know her and seeing Layla grow with the goods that she has got.
My very special cousin ( I love my family ) gave me this gem today, She said that we all need to kiss and hug all the development out of her. All creatures big and small thrive with love. I've got love man... I've got love.
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