A journal of the life and times parenting a different kind of baby, along with her two big sisters. From my unique point of view.
Friday, January 3, 2020
I'm Alright
Sunday, December 22, 2019
Merry Christmas 2019
Thursday, October 19, 2017
The Best
Teachers are on job action from back in June and carrying on into summer - it's August and by the end of the month I am to meet with her Teacher and Education Assistant to discuss gradual entry - to discuss this huge stage in her life and mine.
I am nervous and ready. But, school is closed, no teach to talk to and, well, looks like school isn't even going to start come September. For Maya who is 11 / G 6 and Sabrina 9 G4, this was pretty nice. No school until October!
Nothing happened, so my anxious wait for the start of school was milling in my head.
Nothing. And then there was something that would change everything....
The principal - Ms Taylor phones me and asks if she could come over and meet with Layla - I mean she already was familiar with her when I picked up the girls after school, she often met and greeted kid sister in the hallways. But this meeting was to talk about Kindergarten and the Layla Plan. Coming to my home was unorthodox but given the picket lines, I wasn't going to cross - nor was the wheelchair! She told me she was bringing Layla's potential EA. Ok, I said. What else would I do.
They came and met with me and Layla and we discussed. In theory this all sounded good. Little did I know that in a month and a half when school started, that Layla's entry into public school and the years following , would be hand in hand with an assistant who is even more special than Layla.
That fateful day in the Summer of 2014 Mrs. Cameron came into Layla's life and I tell you .... she is the best thing ever. And the world (or even only the 12 people reading this post) needs to know this. I sing her praises as Layla's Assistant, her pal, her care provider, her guide. My peace of mind.
And I sing her praises now, here in the post titled "The Best", because she is. The best - not because she is leaving the job, or because anything has happened - but just because she is.
Friday, February 3, 2017
Welcome to Holland
WELCOME TO HOLLAND
Emily Perl Kingsley
I am often asked to describe the experience of raising a child with a disability - to try to help people who have not shared that unique experience to understand it, to imagine how it would feel. It's like this......
When you're going to have a baby, it's like planning a fabulous vacation trip - to Italy. You buy a bunch of guide books and make your wonderful plans. The Coliseum. The Michelangelo David. The gondolas in Venice. You may learn some handy phrases in Italian. It's all very exciting.
After months of eager anticipation, the day finally arrives. You pack your bags and off you go.
Several hours later, the plane lands. The stewardess comes in and says, "Welcome to Holland."
"Holland?!?" you say. "What do you mean Holland?? I signed up for Italy! I'm supposed to be in Italy. All my life I've dreamed of going to Italy."
But there's been a change in the flight plan. They've landed in Holland and there you must stay.
The important thing is that they haven't taken you to a horrible, disgusting, filthy place, full of pestilence, famine and disease. It's just a different place.
So you must go out and buy new guide books. And you must learn a whole new language. And you will meet a whole new group of people you would never have met.
It's just a different place. It's slower-paced than Italy, less flashy than Italy. But after you've been there for a while and you catch your breath, you look around.... and you begin to notice that Holland has windmills....and Holland has tulips. Holland even has Rembrandts.
But everyone you know is busy coming and going from Italy... and they're all bragging about what a wonderful time they had there. And for the rest of your life, you will say "Yes, that's where I was supposed to go. That's what I had planned."
And the pain of that will never, ever, ever, ever go away... because the loss of that dream is a very very significant loss.
But... if you spend your life mourning the fact that you didn't get to Italy, you may never be free to enjoy the very special, the very lovely things ... about Holland.
c1987 by Emily Perl Kingsley. All rights reserved
.... these are not my words but they are neat, and resonate with me after having Layla. My flight didn't just redirect, I totally went to another planet. And I am still on it. Its called Richmond, I'm kidding.
Monday, May 9, 2016
Running, Crying, Running, Crying, Running, Crying,
Literally, I am running and crying.
I run. A lot. A few years ago, 2013 to be exact, I ran 13 half marathons. Yup. I did it. I have been running since 1996, 20 glorious years. It started as a result of my having a pretty serious health crisis. When I was younger I was anorexic.
Yes. Some of you know this. It sort of went unannounced. At 22 I hit a weight low of 59 pounds. Leading up to that magic number on the scale, my legs muscles were depleting and I wasn't able to walk. I couldn't walk. I was at UBC at the time, and before hitting rock bottom, my mind wasn't functioning so I couldn't study at all, I wasn't able to physically get around and when I slept I would get bed sores because my bones were digging into my flesh. I was seriously uncomfortable. Hungry, empty, tired. Fragile.
When I started to turn around and eat some eggs (thanks Dad), Mum took me to the track nearby home and we would slowly walk together. I remember a lot of things from those days. I remember clearly the feelings in my legs and feet - it was grueling - when I told her, I will never take these legs for granted again. I said that I am going to be strong again and healthy and I am going to run. Which I never had any interest in as a kid, but I knew that with a new commitment to good health, I will give myself the gift of running.
Boy did I ever. I fricken ran like crazy. It has been an awesome journey of wellness - one that is not about deprivation or control, but of strength. When I run, I feel very connected to my free spirit. Not to mention it is great sport for hyper people like myself.
Swimming was also special when my legs didn't work. I had a donut type of floatation device that I wore around my hips in the local pool so I wouldn't sink. Seriously, no amount of breath holding could keep me afloat at that weight. And I would float and work on my lower body strength.
Funny thing is, I looked like a freak. I looked scary to children. None the less, off to the pool I would go. Into the sauna at the end and there was a boy around my age and he and I got to talking. He asked if I would like to go see a friend's band with him. I looked at him and meekly said, "I am not well.... as you can see"... with my bones sticking out from beneath the skin. He said that he could see that and that he would like to take me. A good boy indeed.
Dad wrote me a lovely affirmation when I was coming out of that crisis. It went something like this...
"through the divine spirit of god, the power of the universe, the magic of mother nature, I am happy, peaceful and calm. The light over me shines wellness all around me as well as strengthening my resolves. I am healthy, strong and well in Mind, Body, Heart and Soul."
I went through a dynamic physical, mental and spiritual change. I pulled through that one.
Another key memory from a low point was looking down the flight of stairs that led to our basement and wanting to fall. I wanted to let myself fall down the stairs and let my body hit the cement wall at the bottom and lose consciousness. Being anorexic, regaining health, getting better - it was all so hard. Everything was so hard. How was I going to get out of this state that I am in?
And then I saw my kids.
I knew that there was life ahead of me as a mother and that must be realized. No exaggeration. At that moment, everything changed.
My body has come a long way and I am dam proud of it. Things could have easily worked out poorly for me, but instead I am strong, flexible, limber and able bodied. I practice and teach yoga. I run. I walked and rolled and gave birth to three children. I got married, and said I do.
Looking at my little girl village now, and ending that married phase of my life, I look to them to understand the journey from "I Do" to "I Did".
My daughters even before birth are my root cause and guiders. They were my inner strength and my strong resolve.
I think it is cool how I got through that space in my time. There is more to this story but that is for another blog post.
While running today a song came on that made me think of Layla and her different life. How that very universe that I trusted to help me heal my legs when they were losing their momentum is the same universe that failed to give her legs that work at all. How ironic. It makes me cry. I run, I cry. I run and I cry.
As I see it, my legs make up for her frailty. How powerful is that? As powerful as my Mind, my Body, my Heart and my Soul.
Thursday, February 4, 2016
The Dawn
the first thought in my mind
is that I love you
So I tell you
Every morning that I am with you
It is the coolest thing to experience
like a bird drops a thought in my ear
and it is how it starts,
untouched by any other thought
undisturbed by my own internal makings
Total truth
and it is all that I know
first thing in the morning
It is that basic and that honest
it is unadultered, unanalyzed, unmasked by any circumstance
it is being in that moment at the break of dawn.
That moment when I know myself best. I know ......
what I see when I open my eyes
and I see you
Wednesday, August 5, 2015
Bat Phone
Wikipedia defines Bat Phone as such:
- It gets answered outside of working hours
- It does not make the caller wait on hold or navigate through cumbersome voice menus
- The line rings straight through to high-level management or technicians without having to be transferred from front lines.
- The number is only given to selected people
- Shields technical personnel from receiving irrelevant calls
These two gals know TMI. Way TMI. WTMI.
These two suggest resources, options, affirmations, yoga poses, books, birth control and gently used clothing.
They held my heart gently when my mum died.